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EVERY CHILD DESERVES THE RIGHT TO LIVE A LIFE WITHOUT PAIN

Crescent Kids mission is provide vital support services to children and families impacted by Sickle Cell and Thalassemia.

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Who We Are

We need your help to stop the pain.

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ABOUT US

We are a London based family; our first son was diagnosed with sickle cell when he was 2 weeks old. The impact has been devastating and affected every area of life, this condition requires more awareness, funding and treatment options.

We launched in 2020 during Covid 19; after crowdfunding to raise funds to provide Covid 19 care packages to families affected with Sickle Cell.

Our overall aim as an organisation is to ‘stop the pain’. We provide support services to the family unit which enable them to navigate the devastating impact of this debilitating condition.

We need an increase in treatment options for this debilitating and life-threatening condition. The current options available are limited. Today, there are opportunities to transform this disease and the way we care for people with SCD and thalassemia.

Our work also includes accelerating research to improve outcomes for individuals with SCD.

Together with your help we know we can improve the quality of life for all children suffering with this condition.

ABOUT OUR CHARITY

Crescent Kids is a UK registered charity with a simple achievable mission: stop the pain. SCD is one of the most common genetic conditions in the world.

The condition affects their quality of life, education, social life and is life threatening. The impact on the child and family unit is catastrophic and relentless.

The current situation is unacceptable, and we are setting out to change it People with sickle cell disease (SCD) are afflicted on two fronts — one by having a serious, chronic condition that inflicts pain and other complications — the other by a fragmented system of care.

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What is Sickle Cell Anemia & Thalassemia?

Whom does it affect:

Sickle Cell is one of the most commonly inherited serious genetic disorders in the world and affects millions of people.

 

It is common among people from Africa; Spanish-speaking regions (South America, the Caribbean, and Central America); Saudi Arabia; India; and Mediterranean countries such as Turkey, Greece, and Italy.

What is it:

Sickle cell & thalassaemia is a serious and lifelong condition, long-term treatment can help manage many of the problems associated with it. It is a disorder that affects hemoglobin, the molecule in red blood cells that deliver oxygen to cells throughout the body. People with this disorder have atypical hemoglobin molecules called hemoglobin S, which can distort red blood cells into a sickle, or crescent shape.

Signs and Symptom

- Low number of red blood cells (anemia).

- Repeated infections

- Periodic episodes of chronic pain
The severity of symptoms varies from person to person. Some people have mild symptoms, while others are frequently hospitalized for more serious complications. The signs and symptoms of sickle cell disease are caused by the sickling of red blood cells. When red blood cells sickle, they break down prematurely, which can lead to anemia.

Let's Stop The Pain

Donate to Crescent Kids

Our Trustees

Our trustees provide strategic guidance and direction, ensuring that goals are in place to drive forward our support of the research and treatment of Sickle Cell & Thalassemia.

Professor Alastair Sutcliffe

Alastair is a Professor of Paediatrics, and has looked after sick children for 30 years, and as a consultant paediatrician most recently at UCLH.

He presently works in research as a Professor at the UCL and Great Ormond Street Institute of Child Health.

Mary Akinbiyi

Mary is a staunch advocate for children with life limiting conditions and is a strong voice for ensuring their needs across all key areas of life are met.

A carer for her own son with Epilepsy she has over 30 years experience in navigating the healthcare...

Jonathan Rivers

Jonathan is a Cloud solutions architect working in the Information Technology Sector. He has been designing and implementing cloud infrastructure platforms for 15 years for a number of global corporate organizations as well as within the public sector and Healthcare.

Our Team

Funmi Vanessa Ullam

Founder

Elijah Ullam

Communications manager

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